Overview

• He met Rep. Eric Swalwell in Washington, D.C., joining I AM ALS to advocate expanded access to clinical trials and greater federal support.
• A viral video shows him speaking more slowly while seated, and recent photos captured him using a wheelchair.
• He said he wants to witness his daughters’ milestones and vowed to “fight until the last breath.”
• He has joined the Push for Progress campaign, which targets $1 billion over three years to accelerate ALS treatments.
• The ACT for ALS law, enacted in 2021 to fund research and patient programs, faces a 2026 expiration and requires renewal.