Overview

• On Sept. 29, Dane met in Washington with I AM ALS and lawmakers including Reps. Eric Swalwell and Frank Pallone to advocate reauthorizing ACT for ALS.
• In a TikTok video from the meetings, he said delays in diagnosis keep patients out of clinical trials and pledged to keep fighting for his daughters’ future.
• He has partnered with I AM ALS on the Push for Progress campaign seeking $1 billion for ALS research over three years.
• Recent footage showed Dane in a motorized wheelchair at a D.C. airport, where he told a paparazzo in a slowed voice, “Keep the faith, man.”
• Rebecca Gayheart said their daughters are “taking it day by day” with help from professional therapists, as Dane has previously disclosed losing full use of his right arm.