Overview

• Emma Heming Willis describes a personalized, largely nonverbal way of communicating with Bruce Willis as his frontotemporal dementia progresses, saying she reads his body language and seeks to validate him.
• Bruce Willis, 70, now lives in a separate residence near the family home, a choice Emma calls one of her hardest decisions because it lets their daughters be children and allows her to focus on being his wife.
• She credits support from Demi Moore and Bruce’s older daughters, saying their blended family helps her navigate care and maintain consistent contact.
• Her book, The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path, was released September 9 and offers practical guidance drawn from their experience.
• Willis was first diagnosed with aphasia in 2022 before doctors confirmed FTD, a degenerative disease with no cure, and coverage notes ongoing research such as a gene-therapy trial in Cardiff.