Overview

• An ABC News special revealed Willis now lives in a nearby “second home” staffed around the clock, a decision Emma Heming Willis says prioritizes their daughters’ needs.
• Heming Willis reports accelerating loss of language, with the family relying on touch and other adapted ways to communicate.
• She says Willis remains physically mobile and in generally good health, though “his brain is failing him.”
• Heming Willis describes early behavioral changes before the 2023 frontotemporal dementia diagnosis and says she initially felt isolated before seeking support.
• She has become a public advocate for caregivers and will publish The Unexpected Journey in the U.S. in September, as experts emphasize FTD is rare, incurable, and often affects self-reflection early.