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Emma Heming Willis Says Bruce Willis’ Dementia Diagnosis Was “Really Traumatic”

She says a sparse 2022 diagnosis left her without guidance, prompting a turn to research and caregiver advocacy.

Overview

  • Speaking to People, Heming Willis recalls learning in November 2022 that Bruce Willis had frontotemporal dementia and leaving with little more than a pamphlet and a suggestion to check back in.
  • She says she initially misread early symptoms — including a returning stutter and breakdowns in conversation — as problems in their marriage before the diagnosis brought clarity.
  • After receiving the diagnosis, she describes feeling relief in understanding his behavior, which helped her adjust her approach to caregiving.
  • Heming Willis has since moved her husband to a nearby one‑story residence with round‑the‑clock support, a decision she discussed in an ABC special that aired August 26.
  • In her book, The Unexpected Journey (out Sept. 9), she aims to offer practical guidance for caregivers and encourage earlier recognition and treatment pathways for FTD.