Overview

• Emma Heming Willis received no guidance after Bruce Willis’s 2022 frontotemporal dementia diagnosis and turned to independent research to assemble a care team.
• She emphasizes that caregiver well-being is essential to sustaining quality care, a insight drawn from her own experience.
• Her advocacy includes backing frontotemporal dementia awareness legislation and speaking alongside figures like Maria Shriver on brain health.
• On May 26, the Women’s Alzheimer’s Movement Forum at the Cleveland Clinic Lou Ruvo Center for Brain Health honored her efforts with an advocacy award.
• Her book, The Unexpected Journey, will be released September 9, 2025, as a practical roadmap for dementia caregivers.