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Emma Heming Willis Publishes Caregiving Memoir, Urges Openness on Bruce Willis’s Dementia

Her new book argues that openness reduces stigma, which she believes will spur research.

Overview

  • In interviews promoting Eine ganz besondere Reise, she says she has always spoken candidly with daughters Mabel, 13, and Evelyn, 11, so they feel no shame about their father’s illness.
  • Bruce Willis received a diagnosis of frontotemporal dementia in November 2022 at age 67.
  • Family routines changed as playdates were curtailed and the house kept quiet for his noise sensitivity, leading her to arrange outside help and set up a second house for him.
  • She hopes public transparency will accelerate research and deliver treatments or even a cure within her children’s lifetimes.
  • She says Bruce’s stature has helped open conversations about dementia and caregiving, with reports describing FTD as a rare, fast‑progressing disease that can erode language and personality.