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Emma Heming Willis Publishes Caregiving Guide as Bruce Willis Receives 24/7 Dementia Care

Her new book translates the family's frontotemporal dementia journey into practical guidance for caregivers.

Overview

  • The book, titled “Eine ganz besondere Reise,” spans more than 350 pages and blends personal narrative with interviews with doctors, nurses, researchers, and support groups.
  • Heming Willis describes the initial diagnosis as traumatic, saying they left the doctor with no plan, no hope, and no clear path forward.
  • She explains the decision to move Bruce Willis into a nearby second house to provide continuous care while maintaining a stable home for their daughters.
  • Early behavioral changes were initially misread as relationship problems before aphasia was identified in early 2022 and a frontotemporal dementia diagnosis followed later that year.
  • Positioning the book as a lifeline, she urges caregiver self‑care and calls for better information and systemic support as she promotes the release through media appearances.