Overview

• On Good Morning America, she said the separate residence with a full-time care team ensures his needs are met at all times and is not up for debate.
• In the book, she writes that creating space also helps prepare their daughters for his eventual death, noting there is no timeline and citing typical FTD life expectancy estimates of seven to 13 years after symptoms begin.
• She says his variant of frontotemporal dementia is primary progressive aphasia, which has severely limited his speech, so the family relies on nonverbal cues even as he remains physically mobile.
• Safety and sensory concerns drove the move to a one-story home, with specialist advice that included avoiding black doormats and using nonconfrontational communication postures.
• She continues regular family visits and uses the memoir and ABC special to advocate for caregivers, referencing a neurologist’s warning about caregiver health and her decision to bring in round-the-clock professional support.