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Ellie James Pushes ‘Owain’s Law’ for Tumour Tissue Rights as Government Resists

She is campaigning to enshrine patients’ rights to preserved tumour samples for experimental immunotherapies

Overview

  • The proposed “Owain’s Law” would require that patients receive full disclosure about tumour histology and guarantee a statutory minimum of fresh‐frozen brain tumour tissue at surgery.
  • Ellie James has collected thousands of petition signatures and won backing from leading brain tumour charities to support her bill in the Senedd.
  • Health Secretary Jeremy Miles argues that a blanket requirement to freeze all tumour tissue could delay critical diagnoses and undermine clinicians’ expert judgment.
  • Under current NHS practice, over 90% of resected tumour samples are used for standard analysis, leaving insufficient tissue for experimental immunotherapies.
  • After her formal meeting request was declined by the health secretary, James plans to escalate her campaign to secure a parliamentary debate on her legislation.