Elliana Rose, 10-Month-Old 'Butterfly Child,' Dies from Rare Skin Disorder

The Campbell family channels grief into advocacy for a cure following Elliana's passing from junctional epidermolysis bullosa.

Elliana Rose Campbell, a 10-month-old with junctional epidermolysis bullosa (JEB), passed away on April 7, 2025, as confirmed by her family.
JEB, a severe and incurable genetic skin disorder, causes fragile skin prone to blistering and internal complications, often shortening life expectancy in severe cases.
The Campbell family documented Elliana's health journey on TikTok, educating over 700,000 followers about JEB and its devastating impact on children and families.
In the wake of Elliana's death, the family launched 'Elliana's Hope for Healing,' a fundraiser supporting research to develop treatments and a cure for epidermolysis bullosa by 2030.
Hannah Campbell expressed heartbreak and determination, urging the public to support efforts to prevent other families from enduring similar loss.