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Edinburgh Mum With Stage 4 Leiomyosarcoma Awaits Leicester Trial for Sarcoma Blood Test

Her symptoms were attributed to menopause, highlighting how rare cancers can evade early detection.

Overview

  • Doctors initially treated a suspected Bartholin's cyst before a 10cm tumour was found in her womb and biopsied in June 2024.
  • By diagnosis, the cancer had spread to her lymph nodes and lungs, confirming stage 4 leiomyosarcoma.
  • She received radiotherapy to shrink the primary mass followed by chemotherapy for lung metastases.
  • She is now on palliative chemotherapy and has outlived an early prognosis of only months to live.
  • She is waiting to join a Leicester research trial for a sarcoma blood test and is fundraising for LMS Research UK while urging people to check lumps and consult their GP.