Overview
- Sam and Tommy Lunn, aged one, were diagnosed after a six‑week check when a GP observed constant eye movement consistent with nystagmus.
- Hospital specialists confirmed ocular albinism, which reduces pigment in the iris and retina, causes glare and light sensitivity, and has no cure.
- Doctors told the parents the condition is manageable and not expected to worsen, offering reassurance on long‑term outlook.
- The family has installed dimmable colour‑changing lighting, uses darkened rooms when needed, and plans for strong glasses as the boys grow.
- Guide Dogs’ My Time to Play provides fortnightly early‑years sessions and transport, giving the twins tailored sensory activities and their parents a supportive community.