Documentary Highlights Struggles of ME/CFS Patients and Calls for Urgent Action

The Arte film 'Chronisch krank, chronisch ignoriert' sheds light on the devastating impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the lack of research and treatment options.

• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating multisystem disease affecting millions, with symptoms including severe exhaustion, cognitive impairment, and organ dysfunction.
• The documentary features personal accounts, including Mila, who has been bedridden since age 16, highlighting the extreme toll of the condition on patients' lives.
• Experts and families emphasize the lack of recognition, research funding, and effective treatments for ME/CFS, despite its growing prevalence due to Long COVID cases.
• The film showcases the tragic story of Maeve, a young woman who died after years of suffering from ME/CFS, underscoring the urgent need for medical advancements.
• Alternative treatments like blood filtration (apheresis) have shown limited success, but their high costs and inconsistent results leave most patients without viable options.

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