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Disability Rights Leader Alice Wong Dies at 51 in San Francisco

Her Disability Visibility Project helped place disabled voices at the center of U.S. policy debate.

Overview

  • Wong died Friday of an infection at UCSF Hospital in San Francisco, according to friend Sandy Ho, who shared Wong’s prewritten farewell on her social media accounts.
  • She founded the Disability Visibility Project in 2014 with StoryCorps, producing hundreds of oral histories now archived at the Library of Congress.
  • Her national recognition included a 2024 MacArthur Fellowship and a 2013 appointment to the National Council on Disability, plus a 2015 White House appearance via telepresence robot.
  • Wong’s advocacy spanned the #CripTheVote campaign, efforts to prioritize vaccines for high‑risk people, calls for masking in healthcare, and opposition to bans on plastic straws relied on by many disabled people.
  • Born to Hong Kong immigrants and living with muscular dystrophy, she used a powered wheelchair and assistive breathing technology, defied early life‑expectancy predictions, and is remembered by family and colleagues as a fierce luminary.