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Derbyshire Teen Begins Hyperbaric Oxygen Therapy After Private Fundraising for PANS Treatment

Over £3,000 raised on GoFundMe has funded Beth's hyperbaric oxygen sessions despite a lack of NHS treatment guidelines in England.

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Overview

  • Beth, 16, started hyperbaric oxygen therapy this month after her family raised more than £3,000 through GoFundMe.
  • She now relies on weekly chiropractic treatments and counselling to manage severe neuropsychiatric and mobility symptoms.
  • Earlier private assessments and treatments, including antibiotics and steroids, cost the family nearly £8,000 and triggered steroid-induced mania.
  • Paediatric Acute-Onset Neuropsychiatric Syndrome sufferers in England face a treatment vacuum due to the absence of NHS diagnosis and care protocols.
  • Her mother, Toni Shepherd, quit her job to provide full-time care and is fundraising for home adaptations and a therapy dog to aid Beth’s daily needs.