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County Durham Parents Share Rare Amniotic Band Syndrome Journey as Baby Thrives Post-Birth

The parents are raising funds for Tommy’s to support research after their son's rare diagnosis.

Overview

  • Doctors at the Royal Victoria Infirmary confirmed amniotic band syndrome after a private 15‑week scan showed the baby’s left hand was missing.
  • Ezra was induced at 37 weeks on 11 April 2025 and received treatment for jaundice shortly after birth before being discharged in good health.
  • He attends three‑monthly appointments at James Cook University Hospital for X‑rays and checks, including monitoring two loose bones near his elbow.
  • He is on a waiting list for prosthetics, and his parents monitor the limb site for signs of infection as he continues to meet milestones, including weekly swimming lessons.
  • In September, Tom Noble completed the Great North Run in about one hour 50 minutes and raised more than £3,500 for pregnancy charity Tommy’s while signposting support from LimbBo.