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California Lawmakers Recognize FTD Awareness Week as Emma Heming Willis Advances Advocacy

She is channeling her family's experience into public outreach capped by a Sept. 9 caregiving memoir.

Overview

  • Emma Heming Willis joined AFTD at the California State Capitol to witness a resolution designating Sept. 21–27 as Frontotemporal Degeneration Awareness Week.
  • She thanked bipartisan sponsors in an Instagram post, calling the resolution "a lifeline of recognition" for families confronting FTD.
  • In a Diane Sawyer interview, she described the moment of Bruce Willis’s diagnosis, saying she felt panicked and heard little after the words were spoken.
  • Her book, The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path, is slated for release on Sept. 9.
  • Mayo Clinic describes FTD as a group of brain disorders that can erode speech and behavior with no cure, while a single NewsNation report has asserted further decline in Willis’s abilities.