Overview

• The Ministry of Health informed Charleigh Pollock’s family on June 18 that government-funded infusions will end June 19 for her $800,000-a-year Brineura treatment
• Canada’s Drug Authority review found Brineura only slows Batten Disease progression in patients whose motor-language scores remain above three
• Charleigh’s mother, Jori Fales, said bi-weekly injections had halted her daughter’s seizures and preserved her quality of life
• Health Minister Josie Osborne explained that Pollock met the program’s discontinuation criteria under the BC Expensive Drugs for Rare Diseases framework
• BC Conservative figures, including MLA Jody Toor and party director Angelo Isidorou, criticized the one-day notice and urged renewed support for Charleigh’s care