Overview
- Nine-month-old Isla-Rae was diagnosed in October with Congenital Pulmonary Airway Malformation, a rare lung condition affecting about 1 in 10,000 babies.
- She suffered a collapsed lung and spent around six hours on life support before the condition was identified.
- Her parents say they made seven GP appointments and eight Royal Stoke visits where symptoms were repeatedly labeled a chest infection or something she would grow out of.
- Isla-Rae is awaiting surgery at Birmingham Children's Hospital as her parents provide round-the-clock care after leaving their jobs and launching a fundraiser.
- Royal Stoke’s chief nurse said the trust is in contact with the family and has a process in place to investigate and share findings.