Overview
- Lulu’s mother said in a Jan. 27 Instagram post that her daughter “passed away peacefully in our arms,” adding that the family is “utterly broken.”
- Lulu was diagnosed in infancy with West syndrome and later with Lennox‑Gastaut syndrome, conditions associated with frequent seizures and developmental impairment.
- Oudshoorn has said roughly 15 anti‑epileptic medications failed to control Lulu’s daily seizures, and doctors did not identify a clear cause.
- The @little.lulu.love page amassed more than 23,000 followers as Oudshoorn documented her daughter’s life and raised money for Epilepsy Action Australia.
- Supporters and charities, including the Tiny Hearts Foundation, posted condolences, while earlier updates noted months of illness in 2025 that included pneumonia.