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Arte documentary exposes opaque data trade and security flaws in consumer DNA tests

The documentary reveals that firms harvest consumer DNA to monetize it through opaque data deals with pharmaceutical companies, insurers

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Overview

  • More than 50 million individuals have submitted DNA samples to direct-to-consumer testing firms such as Ancestry, 23andMe and MyHeritage.
  • In 2018 pharma giant GlaxoSmithKline invested $300 million in 23andMe to secure access to its growing genetic database.
  • Hackers recently stole the genetic profiles of seven million 23andMe customers and sold them on the dark web before the company paid $30 million to settle legal claims.
  • Geneticists warn that up to 40 percent of test results can be inaccurate and major providers refuse to disclose the statistical methods behind their analyses.
  • Insurers in New Zealand are demanding customers’ DNA results to determine coverage and premiums, raising fears of discrimination and exposing regulatory gaps.