Overview

• Able was diagnosed last year with a rhabdoid tumour, described in coverage as exceptionally rare with only 11 cases reported in Europe and understood to be the first adult case in the UK.
• After his disease progressed, the family launched a July fundraiser that the reports say coincided with Guy's Hospital ceasing his therapy.
• Following their online appeals, several clinicians, including a German specialist, contacted the family and helped devise a new treatment plan.
• He suffered a fatal brain bleed after completing the first week of that plan and died in his wife Elle's arms, with a funeral later held for family and friends.
• The family plan to create fully accessible cabins or lodges for patients through The Alex Able Retreat, with GoFundMe donations safeguarded pending Charities Commission registration.