Overview

• Six-year-old Joules Smith was diagnosed with an incurable DIPG brain tumour in May 2024 after her parents noticed balance problems during a family holiday.
• She received radiotherapy at Royal Marsden Hospital and filmed TikTok dance videos with her father that garnered millions of views and participation from the dance group Diversity.
• Working with author Sally Scott, the family published The Girl Who Loves to Dance to celebrate Joules’s passion for movement and spread positivity.
• After Joules’s death in December 2024, her parents founded A Touch of Joules CIC to provide practical and financial support to families of children with life-limiting conditions.
• Their nomination for a Pride of Britain Award is expected to boost the charity’s profile and attract more donations to expand its reach.