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27 States Sue to Halt Sale of 23andMe Genetic Database Without Customer Consent

Offers from Regeneron as well as TTAM Research Institute await court approval in a case driven by consumer privacy concerns

Overview

  • Twenty-seven states and the District of Columbia filed suit June 10 in Missouri bankruptcy court to block the sale of 23andMe’s database of 15 million customer profiles without explicit consent
  • Bankruptcy judge reopened bidding after a $305 million offer from TTAM Research Institute challenged Regeneron’s initial $256 million bid
  • Interim chief executive Joseph Selsavage told Congress that 1.9 million customers, or about 15 percent of users, have asked to delete their genetic data since the March bankruptcy filing
  • State attorneys general argue that immutable DNA information is too sensitive to be traded like ordinary property and requires express, informed consent
  • A hearing on 23andMe’s asset sale is scheduled for June 17, with states seeking a declaratory judgment to enforce stronger consumer privacy protections